Empowering his patients
Caring properly for the 140 patients at Saransk Dialysis Centre is only one part of successful treatment, emphasises Kokinov. Patient education about how to live – and enjoy life – with chronic kidney disease is the other essential part. ‘Patients coming for treatment have different levels of medical knowledge. Often they know nothing at all,’ he said. Many are confused when they enter the dialysis centre for the first time and it’s his role to act as a missionary.
Kokinov believes in a hands-on approach to learning. He shows patients the right way to do things, provides the necessary knowledge on the choice of treatment, explains how to follow therapy, gives recommendations on diet and hygiene, and shares travel opportunities and ways to stay active. ‘With this knowledge the patients are no longer helpless. They become partners with the doctors and nurses in caring for their own health, a task requiring continuity,’ Kokinov says.
Part of the centre’s programme to educate and empower patients includes inviting them to regular seminars covering various dialysis related topics. Dialysis patients in Mordovia are especially lucky. They have founded a regional support group to promote their interests and recently organised a meeting with the Ministry of Health at the centre. ‘Our patients had an opportunity to inform the minister and his assistants in person about their problems and get answers to their questions,’ said Kokinov. The meeting was a huge success: all decisions including those concerning preferential provision medicines were immediately taken on-site. ‘I think this experience could be used by other regions’.